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Supporting Our Sickle Cell Warriors
At NOB Foundation, our primary focus is to support sickle cell warriors in under-resourced communities. We do this through our quarterly “Gift to a Warrior” community outreach program where we provide free routine medicines, food items and educational resources to individuals and families impacted by sickle cell in communities in need.
Why medicines for sickle cell?
Our sickle cell program also referred to as the “Gift to A Warrior” program provides sickle cell warriors in need with free access to their routine medications like folic acid, vitamin B and other preventative medicines. For a sickle cell patient, especially those living in parts of the world like Africa where foods may typically not be fortified, access to folic acid supplementation along with other preventative medicines can be lifesaving. Unlike typical red blood cells which have a lifespan of about 120 days, sickle cell red blood cells last only about 10-20 days or less and can break down easily leading to anemia and folate deficiency. Increase in folate intake through diet and supplementation can help make new red blood cells and reduce symptoms of anemia and other debilitating complications sickle cell patients deal with. For these reasons, we at NOB Foundation prioritize our sickle cell program by giving free routine medicines, food items and other educational resources to our beneficiaries. This is our way of giving them one less thing to worry about as they battle sickle cell and their other daily needs.
Educating Our Communities on Sickle Cell Disease/Trait
We provide evidence-based educational resources that address the common myths and misconceptions about sickle cell disease and information/testing resources that can help individuals
Why education for sickle cell disease/trait?
Education remains one of the most reliable means to break the stigmas that come with sickle cell disease. Often mistakenly seen as a curse rather than a genetic blood disorder, individuals living with sickle cell face significant stigmas that can impact their mental health while also dealing with the debilitating complications of sickle cell. When two parents are sickle cell trait carriers, they have a 25% chance of having a child born with sickle cell disease, a 50% chance of a child born also with sickle cell trait and a 25% of a child with neither. Evidence and evolving research confirms that, while sickle cell trait typically doesn’t cause complications, certain conditions and risk factors can result in complications in those with sickle cell trait. For these reasons, our sickle cell mission continues with both sickle cell disease and trait education and testing resources in communities most impacted by sickle cell.
Collaborating with Our Local Partners for a Greater Good
Living by our vision of “leaving No One Behind” we collaborate with local non-profits on aligned healthcare initiatives to expand our reach and impact in the communities we serve.
Why collaboration?
At NOB Foundation, while sickle cell is and will always be our primary focus, the individuals we help also live in communities who have other healthcare needs. We know we can’t do it all and because we believe in the power in numbers, our collaboration efforts ensure that we can empower our partners on aligned healthcare initiatives to create and expand our impact in the communities we serve. Our collaborative initiatives primarily support malaria prevention and women’s health.
“Life’s most persistent and urgent question is, “What are you doing for others?”
– Dr. Martin Luther King Jr.
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